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Channel: Own Your Health » Marfan Syndrome
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Sorry You Stroked, but Heart-wise You’re Fine

“My doctor never looks me in the eye.” “My doctor never asks how my spouse or family is coping with my illness.” “I always feel rushed in my doctor’s office.” Almost every patient whom I interviewed...

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Using the Mind to Free the Body

A lesson in the Alexander Technique is one of effortless ease — almost as if you were floating without the pull of gravity. You want to package up that floating feeling, carry it off with you, and...

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Restoring the Rhythm of the Body

If your health problems include chronic pain in your joints or back, headaches, or ear infections, you might benefit from a craniosacral therapy — after consultation with your doctor, of course. During...

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The Power of the Flower

Recently, my doctor prescribed a drug to regulate my heart rhythm—something that I have periodically needed after my Marfan-related heart surgery. The drug, digoxin, is derived from the foxglove plant,...

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Why I Like Tai Chi

The slow, flowing movements look like a dance, but it is what goes on inside the body that makes Tai chi different: During a class recently, I felt as if my body were getting hooked up to a universal...

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For a Friend Who Died of Marfan Syndrome

Cleaning out an old filing cabinet, I came upon a poem I had written 24 years ago, just after I had given birth to my first child, Benjamin. This spring, he will be married. His younger sister,...

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Healing Arts for Marfan and Chronic Pain

I recently helped to organize a Healing Arts workshop for the National Marfan Foundation annual meeting, which was held in Boson this year. More than 30 participants heard and asked questions of a...

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Walking from the Heart

This fall, I participated in the American Heart Association HeartWalk in Boston. This was significant for me on several levels: I did the walk with my two children, now 25 and 21. These are children  I...

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Healing Hands: Physical Therapy for function, mobility, and comfort

I  have discovered a unique, highly effective form of physical therapy that combines the best elements of personal training with muscular therapy. Valerie Ruccia Eagan has developed her own brand of...

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